An inspiring running story that you need to read.

Today I have a Q&A with Angela Colulombe.  Her story is absolutely incredible and so inspiring.  She has Lyme Disease and was unable to even walk or get dressed by herself and has now qualified for the Boston Marathon.   She is truly amazing.

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Tell me about your running story! Why did you start running?  How long have you been running?  When did you qualify for the Boston Marathon? 

I started running in 2006 at the suggestion on a friend, Lisa Labonte. Both she and I had enrolled our young children in Taekwondo and started to do TKD with them. As part of TKD, you need to spar, and I found that I was getting “puffed out” easily. Lisa suggested I start running to help build up my stamina, cardio and endurance. She told me about a group of runners who meet local to our workplaces, Tuesday and Thursday at lunch time, and I have been running with that group since. When I first started running, I was completely clueless. I didn’t have the right foot gear or apparel, but I did have a lot of enthusiasm for it. From August 2007 – April 2009, I was not able to run or do any activities due to Lyme Disease. I was reduced to a near invalid, unable to walk properly, lift my legs to dress myself, lift my arms over my head, etc. Prior to Lyme I could run a mile easily in 7minutes. My first mile in April 2009 took 45 minutes of stopping/ starting, walking, jogging, crying, shouting at myself, nose blowing, laughing at the absurdity of the situation, but it also made me more determined than ever to regain what the disease had taken away from me. Again, with my friend Lisa, I began working hard to try to run again. The Tuesday / Thursday group were so supportive, never leaving me behind when they could have easily done so. And, I made up my mind that if I could recover, I would do something to help others with Lyme and do something to raise awareness about the disease. I decided I would run a marathon, my first marathon ever, and not just any marathon, but the NYC marathon (and I finally started to dress appropriately, discovering Brooks Running which I have worn religiously ever since!!). In November 2010, after my three year struggle with the disease, I ran the NYC Marathon in 4:12:58 and also got the marathon bug (brief video of the experience can be found here: http://www.lymerunner.com/?p=318). That’s when Lisa and I decided we needed another goal to work towards, qualifying for the Boston Marathon for our 50th birthdays. Last year I did that, I qualified for my age group (49 yr old) by running the Hartford Marathon in 3:41:35 (details here:http://www.lymerunner.com/?p=417), which I hope to run now is April 2014.

What is your training schedule like?

Well, that’s an interesting question. Right now I am also doing some triathlons, so I’ve been doing a lot of cross training and brick work as well as running with my Tue/Thu group. My next triathlon is June 9, so I’ve been spending weekends getting up at 5am to swim, bike and run at Cape Elizabeth, a very hilly area. I also do strength training 3x a week, a core workout and a class on Thursday nights called “Ultimate Body Conditioning”. It’s like boot camp on steroids and isn’t for the faint hearted. It’s run by Linda Burgess, a body builder who’s motto is that she’s old enough to be your mom, but strong enough to be your father!! This year I am running the Chicago marathon in October and will start training for that in July using Hal Higdon’s intermediate 1 http://www.halhigdon.com/training/51139/marathon-intermediate-1-training-program but mixing into that one day a week of interval training which a group of friend and I do at our local track, during the summer or hottest months in Maine, so for this, we get up at 4am to be at the track at 5am for an 1.5 hr workout before it gets too hot and humid.

423766 4580752160843 1854287504 n 260x300What are some of your running goals and dreams?

My goal right now is to run “The Big 5 for Lyme”, meaning, NYC, Boston, Chicago, London and Berlin, all to continue to raise awareness about Lyme disease. So, I can check NYC off the list, Chicago after this October, hopefully Boston after next April, I will try to do Berlin that autumn and then hopefully finish up in London in April of 2015. I also would love to knock some more time off my 3:41 marathon time, so would love to run Chicago in 3:30 or around that time. And, one of my biggest accomplishments has been the start of an annual race, Jimmy the Greeks Maine Mall 5K for Lyme Disease Awareness, to bring together the Lyme community and to help raise awareness and prevention about the disease. In its inaugural year we had over 290 runners and walkers participate, and this year, the 2nd year of the event, we had over 400 runners and walkers participate. On the very flippant side, the group of women friends I run with also would love to have our own reality TV show called, “The Real Runners of New England” because, as you probably know, a lot happens on the running path!!! 

What keeps your running through the hard times?

Well, for me, its really very personal. Remembering what it was like not to be able to walk, climb stairs, dress myself and knowing that I am one of the lucky Lyme survivors who can now not only walk but run, keeps me going. I have now met so many people who are affected by Lyme and cannot do what I can and will never be able to humbles me makes me more determined to run for them and for everyone who is struggling to regain their health and well being. 

558287 541502079201290 911770436 nCould you possibly tell us a little bit about Lyme Disease and how it has personally affected you and your running?

Here is a piece I recently wrote so our senators in support of a piece of legislation, LD-597, which pretty much summarizes my experience with Lyme:
In August 2007, a week after I finished running the 10th Anniversary of the Beach to Beacon 10K road race, I started to experience the first symptoms of Lyme Disease, ie, a swollen right knee and mild joint aches. As weeks went by, I started to experience more Lyme related symptoms; muscle aches, migraines, nausea, fatigue and general lethargy on top of a continued swollen right knee and joint aches . I did not know anything about Lyme Disease so did not make any connection between my symptoms and the disease. In October 2007, 3 months after the onset of the initial symptoms, a bulls-eye rash appeared on my upper arm. I showed my mother who did know about Lyme who suggested I see my PCP immediately. My PCP sent me to an ID who diagnosed me with Lyme Disease, gave me 3 weeks of doxycycline (standard CDC treatment) and told me I’d be fine.  Three weeks later I was anything but fine. I could no longer turn my head, lift my arms up over my head, dress myself, climb stairs unassisted, get in and out of bed unassisted, roll over in bed unassisted, look after my two small children or carry on anything resembling the normal life I had lived. The pain in my joints was overwhelming. Living meant dealing with the pain on a minute-by-minute basis to try to make it through the day. I phoned  the infectious disease specialist back telling him I thought I needed more antibiotics as I was so sick I could not move. He refused to prescribe more saying that what I was experiencing had nothing to do with Lyme and was simply old age and arthritis (though I was only 43 at the time and had NO signs of any arthritis in all the tests done along with my initial Lyme test). I had no idea what I would do next. This was the end of October 2007.

By mid November 2007, I wished to die.  With no cure, no help and no hope in sight, I could not see myself , once an active athlete and caring mother,  living the life of an invalid while enduring the most excruciating pain I have ever known in my life (and as a veteran of two home births out of choice, I know a bit about pain).  My sister told me of  a DO who was Lyme literate and might be able to help me. A beacon of hope came into my life. 

I first saw this DO at the end of November 2007. I was put back onto antibiotics and a month later, by my own request to try to not take antibiotics, I was put on the Zhang protocol  to fight coinfections with Babesia and Bartonella. Progress was slow, but progress was made.  I started to regain my strength, appetite and ability to look after my children. By April of 2009 I was off all supplements and I was able to start exercising again. By November 2010, I ran the New York City Marathon in 4:12:58. In 2012 I completed these races/ triahtlons with these times: (visithttp://www.lymerunner.com/?p=417 <http://www.lymerunner.com/?p=417>  for a recap)

January 15,  2012 – Jimmy the Greeks Frozen 4 miler: 31:02 (run in 8F weather!)
February 5, 2012 – Mid Winter Classic (10 miles): 1:24:10 (slightly warmer, 24F)
April 7, 2012 – Burns Run for Education: 5k 21:00 
April 29, 2012 – Jimmy the Greeks Maine Mall 5k for Lyme Disease:  23:08
May  5, 2012 – Polar Bear Tri: Clock Time: 1:18:51.2  
Swim: 12:42, Bike: 37:33, Run: 23:37 
June 6, 2012 – Pirate Tri: Clock Time 1:26:57.9 
Swim: 12:39, Bike: 48:34, Run: 22:24 
July 29, 2012 – Tri for a Cure Triathlon (part of relay team Lymphomaniacs, my sister has Lymphoma, she rode, a friend swam, I ran 5K):  21: 36. (that’s a 6:58 pace mile my first PR for the year.)
August 5, 2012 – Beach to Beacon 10k: 48:58.7 (crazy hot humid day, 85F)
September 9, 2012 – The Nation Tri, Washington, DC. Runner in relay team: 46.46 second PR of the year for a 10K. Our relay team came in 6th place!! 

October 13, 2012 – Hartford Marathon 26.2: 3:41:35 and qualified in my age group for the Boston Marathon, which I intend to run in 2014.

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What is your advice for runners going through a hard time to stay positive and to keep running?  How did you go from not being able to walk to now qualifying for the Boston Marathon?

I’ve been very, very fortunate to have discovered and built a network of friends who are runners and we all support each other. We all plan our runs together, our running events, our training. We have formed a really tight bond and we all help each other push through those times when we might not be feeling it. We do it with humour and hard work. I think it is important to have friends who are runners or if you don’t have that, to find a running group who can help support you through times when you might be having some difficulties. I could not have done what I’ve done without the love and support of my husband, my children, my extended family and my friends. When I wanted to give up, my husband would not let me. He has been and continues to be, my biggest supporter and best friend. He encourages me to give everything my all and he is always with me at every race as my “back up” man. I truly owe him my life! 

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33 comments

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Wow, that is so inspiring! And now it’s decided, getting healthy is happening asap. If she can overcome so much to run and find a level of physical fitness that keeps her happy and healthy, I can to!

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Hi Lidia, thank you for the very positive comment. Please feel free to contact me for any support I can give you as you too pursue a physical fitness routine. I love being other people’s cheerleader because I love to hear about other peoples stories as well! http://www.lymerunner.com Thanks again.

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Thanks for sharing!!! She is incredible. And so is her supportive husband and family!

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Hi Elizabeth, thank you for such a lovely comment. I am very, very, very fortunate that I have such a supportive and loving husband and two wonderful sons. I have heard from my other people with Lyme who are not as fortunate and have had their relationships and family life destroyed as a result. It seems crazy that a small tick can cause so much havoc.
Thank you again for the lovely comment and happy running to you!

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Thanks for sharing such an inspiring story. What an incredible woman! Have a great weekend!

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Thank you Nicole for the lovely comment. This weekend, Sunday June 9, I’ll be participating in a triathlon, the Pirate Tri, held at Sebago Lake in Maine. I have been working hard to try to improve on my times of last year, and doing so has helped me to feel stronger and more positive about my health and my ability to remain strong. I am looking forward to starting my 18 week Hal Higdon training on June 10, for the Chicago marathon. Having positive feedback such as yours motivates me even more to give it my all. Thank you so much for taking the time to comment. Happy running!

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Angela,

Way to go! What a fabulous name you have, too!

Keep up all that you are doing. Way to remember that support team!

A dear friend’s daughter still runs ultras when she can despite being diagnosed with Lyme disease 5 years ago. My hub still runs faster than me even though he was nearly killed 3 years ago while training for BSLT 70.3.

You can do anything. Even when it’s painfully tough, my hub always tells me that he runs and competes tris to show others what they can do… even with 9 inches of titanium holding on his right ankle with screws.

Angela, you got it. Thank you for sharing with us!

All the best,

Wendy

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Hi Wendy,
That is quite incredible about your husband, I would love to know more about his story. Also, I would love to know about your friend’s daughter who also runs with Lyme Disease. When I was really sick, I could only find info about two people with the disease who were runners: Bart Yasso and Perry Fields, but they both seemed more like pro runners and not the average runner like me. Having said that, when I contacted both of them, they both replied very positively and supportively and Bart was especially helpful as I trained for my first marathon in NYC.
I truly believe that EVERYONE has a story and a reason for running and I love hearing about them as they inspire me too and help me put my situation into perspective. Your husbands sheer determination and outlook is remarkable and another example of someone taking what appears to be an adverse situation and turning it around to help themselves and others . Kudos to him, your neighbour and to you! All the best and happy running!

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Wow!! Now I really have no excuse not to run faster or further. Thanks for sharing such an incredible story!!

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Wow I’m so proud of this women, yet I only found out about her a few minutes ago. If you’re reading, you are such an inspiration to everyone! I am a new runner and get really disappointed in myself if I don’t finish the time I want to during my training runs. Now I’m going to have you on my mind as motivation. Thank you for your story!

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I can’t believe my running buddies and I aren’t the only ones who’ve talked about a whole TV show about us. Too funny! What a great and inspirational story. Hope she gets in to Boston 2014 — I think it’s going to be tough, but she should be very safe with a BQ-20!

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Thanks for sharing a great story!

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So inspiring! Good luck in Boston 2014!

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This reminds me a lot of my sister. She was a very good runner in highschool and she did run some in college, not for the school, just for herself. Fitness sort of got lost in the shuffle after college but I always thought she would get back into it. Fastforward to today. She has severe fibromyalgia is finally on a good protocol of meds but I so wish she would add more fitness/running into the mix. She joined the Y though. She still has days that she can barely move. Hopefully one day she will do it again!

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What an amazing woman!

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So. So amazing. I love stories like this.

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WOW. Life certainly does get put into perspective…. truly amazing :)

and her training schedule sounds brutal!! haha I am tired reading it!

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Thank toy so much for this! I went in for testing today regarding precancer cells. I am hopeful that whatever happens I have running to keep me sane even if I lose all strength I can remain positive and focus on what I can do not on what I cant. God gives us a choice in how we can respond to life’s hardships and I love this woman’s drive and outlook. She took the situation and even funded a charity! !!! So inspiring!!!!

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Such an inspiring story! You don’t generally hear a lot about Lyme disease, so thank you for bringing awareness to an important cause!

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Angela, you are incredibly inspiring. Seeing stories like yours make me realize that no matter how bad a day i think I am having, I’m just lucky to be running and living.

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WOW! Such an inspirational story. I am always amazed at what people are capable when determined. Thanks for sharing!

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AMAZING!!! Confirms my belief….anything is possible. TFS.

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You are an inspiration to me. I have been going through a rough recovery period from a liver transplant and a drug resistant viral infection. I am currently doing IV treatments at my home for 9 hours a day. My exercise consists of up and down a full flight of stairs several times a day and walking until I am out of breath. But, I get a little stronger each day and I am determined to return to my old healthy self. Our daughter has taken up running and she has never felt or looked better. If she can do it and Angela can do it than so can I. I am a lot older then they are and I may never run the Boston or do a Tri but I will run again. Thanks for your encouragement.

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Wow. I had the bullseye rash appear on Monday. I am on doxycycline right now, as well as some herbal antibiotics for the coinfections you mentioned. I’ve been somewhat panicking all week, but this has helped me to feel a little better. Such an inspiration!

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She’s such an inspiration for others with Lyme disease. Thanks for sharing!

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Thank you so much for sharing this wonderful story on your blog! Angela, you are such an inspiration!

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Wow an amazing story! She is amazing and a total inspiration.
I didn’t know much about Lyme disease but now I know a little more!
Thanks for this interview :)

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This is truly amazing! I have seen people with many of these similar painful and debilitating symptoms with Lyme disease when I worked at the hospital and it is so inspiring to see how Angela has recovered! Thank you so much for sharing!

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What a wonderful story!!!
So inspiring!!!

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Wow! and my excuses everyday are so lame

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Thank you for sharing this! I had a very similar experience to Angela. I also was sick from Lyme and could not function on a day to day basis for 2 years. I was on antibiotics for a year and am finally living a normal life today. Unfortunately Angela’s story is not uncommon. Lyme disease is grossly under-diagnosed and there is not enough awareness in the medical community about chronic Lyme. I would encourage anyone who is interested in learning more to check out the documentary “Under Our Skin.” http://www.underourskin.com/. Thanks again for sharing this incredible story!

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I want to thank everyone who commented on this post. It really humbles me that so many would find my story inspiring. I am working my way through everyone’s comments so I can personally reply to all of you wonderful people. But, of course, like most, I have a day job, a family, kids activities, and of course, my training for different sporting events, but I will reply to you all because you have all touched my life with your very positive comments and feedback and I thank yo all for that!
All the best to you all – Ange aka, Lymerunner

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The week after this appeared on your blog, a woman from the gym I go to, and who also participates in the same Ultimate Body Conditioning class, came up to me and said, “I read your story on the Hungry Runner Girl’s website.” Like so many, she did not know about my battle with Lyme. That isn’t what people see when they see me at the gym working out or running, though I try to wear a bright green top (sometimes with a Lyme awareness message) on all my runs. Thanks for also making it easier for me to discuss this issue with my community and continuing to raise awareness within my community and beyond.

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